Today we spoke to someone from the South African Hemophilia Foundation regarding the World Hemophilia Day thats on the 17th April 2015. We needed to find out more about the the disorder and the day in which its celebrated.
For more information about the awareness please call 021 758 7140
Theme for 2015: Building a family of support.
World Haemophilia Day is commemorated on 17 April, giving haemophilia organisations around the world an opportunity to increase awareness of haemophilia.
World Haemophilia Day was started in 1989. The World Federation of Haemophilia (WHF) chose 17 April in honour of WFH founder Frank Schnabel, who was born on that day.
The day in 2015 will be used to raise awareness about bleeding disorders and the need to build a family of support for those living with them.
Families come in many forms but they all share the ability to support and advocate. World Hemophilia Day provides an opportunity to talk to your extended family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding disorder.
You can also go one step further and have a local landmark, a light in your home or office, or your front porch light lit in red on April 17 to show your commitment to the bleeding disorder community.
This year connect the global bleeding disorder family on the World Federation of Hemophilia social media network and encourage your online community to join the global family.